Every year, 100,000 babies don't make it to their first birthday because of CHD.
Callie Shay Harper Gullahorn | Heart Warrior of the Week

Callie Shay Harper Gullahorn | Heart Warrior of the Week

Callie’s parents went into their anatomy scan like most expectant parents do – excited to find out the sex of their baby.  Instead of a celebratory type of visit, they got a piece of news that they couldn’t have imagined in their wildest dreams – their little girl had congenital heart disease...
Rycker William Daniel Rohm-Deceder | Heart Warrior of the Week

Rycker William Daniel Rohm-Deceder | Heart Warrior of the Week

Rycker William Daniel Rohm-Deceder is our Heart Warrior of the Week! Rycker’s Mom and Dad received some of the most devastating news a parent can get at their 24-week ultrasound – their baby had two holes in his heart that would need open-heart surgery to be repaired. His diagnosis would end...
January 30, 2018 by Lani O'Gorman
Brink Matthew Ansell | Heart Warrior of the Week

Brink Matthew Ansell | Heart Warrior of the Week

Brink Matthew Ansell was born on July 20th, 2016. Like so many others, Brink’s parents were overjoyed about the addition to their family; spending time loving on their healthy and happy baby boy. However, their elation would soon turn to worry and heartache when Brink’s health took a turn for...
CHD, congenital heart disease

Sloan Elise Rieke | Heart Warrior of the Week

Meet Sloan Elise Rieke, your Heart Warrior of the Week! Sloan came into the world on February 28th, 2017; doctors quickly picked up a heart murmur and decided to monitor it closely even though it wasn’t much of a concern initially (it is not uncommon for newborn babies to have...
chd, congenital heart disease, tetralogy of fallot

Trent Timothy Harding | Heart Warrior of the Week

Trent Timothy Harding is our Heart Warrior of the Week! Trent was born on November 30th, 2010, but wasn’t diagnosed with Tetralogy of Fallot until he was 5 weeks old. He has undergone two open-heart surgeries throughout his journey with CHD. The first was an emergency surgery in which a...
Ryder James Montano | Heart Warrior of the Week

Ryder James Montano | Heart Warrior of the Week

Save the Heartbeat Fam, meet Ryder James Montano, our Heart Warrior of the Week! Ryder was born on September 29th, 2011, his pediatrician detected a heart murmur shortly after his birth. He was officially diagnosed with pulmonary stenosis at 6 months and was later diagnosed with supravalvular aortic stenosis at...
save the heartbeat

Zola Amelia Given | Heart Warrior of the Week

Zola Amelia Given is our Heart Warrior of the Week! Zola’s parents, Cortney and Jeff, were at their 18-week anatomy scan when they received the devastating news that their little girl was going to be born with Hypoplastic Left Heart Syndrome (HLHS).  This small but mighty Heart Warrior was born...

Conley James Hickman | Heart Warrior of the Week

Conley James Hickman | Heart Warrior of the Week

Our Heart Warrior of the Week is Conley James Hickman or “Conley the Brave,” who is living with Tetralogy of Fallot.  He and his fraternal twin brother were born at 34 weeks gestation on February 26th, 2017.  This is his story, as told by his Mom, Kate. Conley was diagnosed...

Colton Gregory Murray | Heart Warrior of the Week

Colton Gregory Murray | Heart Warrior of the Week

Save the Heartbeat Fam, meet Colton Gregory Murray, your Heart Warrior of the Week! Colton was diagnosed with tricuspid atresia, hypoplastic right ventricle, and unbalanced AV canal at 22 weeks gestation.  After being born on December 29th, 2015 he was also diagnosed with Tetralogy of Fallot.  His small but mighty...
chd, chd awareness, chd support, chd support group, congenital heart disease

Hunter J. McArter | Heart Warrior of the Week

Hunter J. McArter is our #HeartWarrior of the Week! Hunter’s parents received the news that there was something very wrong with their son’s heart at their 20-week ultrasound. Turns out there are many things wrong with his heart, he was diagnosed with tricuspid atresia type 2, transposition of the great...