Every year, 100,000 babies don't make it to their first birthday because of CHD.
Alexandra Rolland | Heart Warrior of the Week

Our Heart Warrior of the Week is Alexandra Rolland, an adult CHDer with a very unique story – she wasn’t diagnosed with her defect until she was 19 years old. We talked with Alexandra, this is what she had to say about CHD, healthcare, and advocating for adults living with congenital heart disease.

Save the Heartbeat: What is your heart defect(s)?

Alexandra Rolland: Bicuspid aortic valve (BAV), which resulted in significant regurgitation and dilation of aortic root.

STHB: When were you born?

AR: Feb 20th, 1990

STHB: Were you diagnosed in-utero?

AR: No. I was diagnosed as a 19 year old.

STHB: Wow, that’s a long time do be living with an undiagnosed CHD. How did doctors discover your defect after all those years?

AR: I was otherwise healthy and went to my family doctor for a routine appointment. She was doing routine exams and had a listen to my heart. She noted that she heard a very subtle murmur. And that’s how it all started!

STHB: How many surgeries/procedures have you had?

AR: I’ve only had one surgery (August 2017) to replace my aortic valve and root. Prior to that I had a loop recorder implanted in the autumn of 2016 but that is just an outpatient procedure and not a surgery.

STHB: Can you tell us more about your surgery in August of 2017? What kind of surgery was it?

AR: I had a Bentall Procedure. This replaced the root of my aorta as well as the aortic valve with an artificial piece. The purpose of this surgery was to correct the Bicuspid Aortic Valve by replacing it. It is meant to be a “curative” procedure and by having an artificial valve and root, the hope is that it will not need to be done ever again.

STHB: How much time did you spend in the hospital after your surgery?

AR: Related to my CHD I have only spent about 10 nights in the hospital. Prior to having surgery my health declined quite quickly and I fainted a number of times resulting in a few stays to monitor my cardiac function. I was also admitted for 7 days when I had my surgery last August.

STHB: Do you have to take any medications to maintain your heart function?

AR: I take Warfarin for anti-coagulation. I do not currently have a blood clotting issue but I take the medication to ensure that no clots adhere to my artificial valve (which would cause a lot of complications).

STHB: Will you have to take this for life or is it something more temporary?

AR: I will take this (or some method of anti-coagulation) for the rest of my life.

STHB: Are there any restrictions you face as a result of your CHD?

AR: I used to have a lot of physical restrictions in the months leading up to my surgery, however now that I have had surgery I do not have restrictions.

STHB: You mentioned the fact you now have an artificial valve might mean you won’t have to have any more tune-ups. Do your doctors anticipate you needing any other surgeries as a result of your heart defect?

AR: The hope is that I won’t need any more surgeries. I am currently waiting to see a plastics specialist regarding my scar as it has become quite hypertrophic and needs some treatment. But related directly to my heart I [hopefully] do not need any more procedures.

STHB: Are there any worries or challenges you have faced/continue to face being a CHD Warrior?

AR: When I was originally diagnosed I was quite frightened as within an instant I went from being a healthy 19 year old to being a 19 year old with a congenital heart defect. This was quite an adjustment for me but I quickly realized I was still not physically limited and was still able to accomplish all of my dreams.

I am so lucky to live in a country where I do not have financial burdens associated with my healthcare.

STHB: Is there anything else you want to share that we haven’t touched on?

AR: I’ve been exceptionally fortunate to have my wife support me through my journey to surgery in the last few years. What I have noticed is that there is a lot of information available for young patients who have CHD, and lots of information for adults with acquired heart disease, but there seems to be a lack of information or advocacy around being an adult with CHD. This has been challenging, in particular when preparing for surgery and trying to find information about what it is like from the patient’s perspective. This is why I started an Instagram account called @thelittleheartthatcould, I figured it might help other people and it has been hugely helpful to me during my recovery as I’ve been able to connect with other adults who are living with CHD and having surgeries in adulthood.

Bicuspid Aortic Valve – Learn the Facts

Anatomy: Normally, the aortic valve has three small flaps or leaflets that open widely and close securely to regulate blood flow.  With BAV, the valve has only two leaflets.

Complications: Because of this deformity, the valve doesn’t function properly. This results in inhibited or leaky blood flow, which affects the overall heart function and leaves the body with low oxygen. Aortic aneurysms, heart infection, and narrowing of the aorta can also occur.  However, a bicuspid aortic valve may function adequately for months or years without causing symptoms or obvious signs of a problem. 

Symptoms: Shortness of breath during activity, dizziness, fainting due to lack of blood flow to the brain, and heart murmurs.

Treatment: Options include surgical repair or medications, while some patients may not need any intervention at all.

Prevalence: BAV accounts for approximately 2% of all CHD’s. It is twice as common in males as it is in females, occurring in 4.6 out of 1000 live births worldwide.

Comments

AnnasysBum

AnnasysBum said:

камни знака зодиака близнецы
камни знакам зодиака лев
камни знакам зодиака овен
знаки зодиака близнецы камень
камни скорпион знаки зодиака

https://yournewstops.blogspot.com/2021/04/blog-post_56.html
https://aboutnews2k.blogspot.com/2021/05/blog-post.html
https://bopspopss.blogspot.com/2021/05/blog-post.html

знаки зодиака камни овна
камень знаки зодиака стрелец
камни знаку зодиаку дева
камни знакам зодиака дева
аметист камень знак зодиака

знаки зодиака близнец камень

лунные камни знаков зодиака

камни знака зодиака водолей

знак зодиака рака камни
камни знак зодиака рака
камни знак зодиака близнец
энергия камней знаки зодиака
знак зодиака льва камень

AnnasysBum

AnnasysBum said:

hp laserjet p1102 driver windows 10 free downloadlogitech c920 driver windows 10 downloaddata backup software free download for windows 7 freewindows 7 spider solitaire download free freedownload gta san andreas pc windows 10 freeinternet download manager for pc windows 10movie maker download free windows 7 freedownload windows 7 start menu for windows xp freefraps download for windows 10download iobit uninstaller windows 10
autocad download for windows 10

imessage download windows 10

hp laserjet 1200 driver windows 7 free download free

dota 1 free download full game pc

checksur.exe download for windows 7 free

bittorrent for pc free download

jdk file download for windows 10

bluetooth for desktop pc free download

download microsoft visual studio express 2013 for windows desktop free

chain reaction game download for pc

windows video player free download for windows 8 free
chromecast download pc windows 8
american truck simulator download free full version pc
download overwatch pc free
google chrome download for windows 7 pc free

https://fundamentservis.ru/pillars-of-eternity-2-hall-of-unseen-hall-of-the/
https://fundamentservis.ru/subway-surfers-world-tour-hawaii-subway-surfers/
https://fundamentservis.ru/hewlett-packard-scanner-3300c-hp-scanjet-scanner/
https://fundamentservis.ru/epson-workforce-615-drivers-epson-workforce-615/
https://fundamentservis.ru/brother-mfc-290c-printer-about-this-item/

windows 10 activator download free free
chicken invaders 1 game free download full version for pc
vb 6 free download for windows xp free
imessage download windows 10
opera mini download for pc windows 10 64 bit

free download windows xp 2014 free
windows xp setup free download for pc
microsoft excel download free windows 10
download python 3.4 for windows 10 64 bit
free download mediaget for windows 8 free

bixolon srp-350ii driver windows 7 download free
firefox software download for windows 10
adobe pagemaker 7.0 free download for windows 10 32 bit
call of duty pc download windows 10
microsoft word 2007 for windows 7 ultimate free download free

https://fundamentservis.ru/wacom-pth-651-about-this-item/
https://fundamentservis.ru/msi-gaming-app-overclock-mode-msi-gaming-app-safe/
https://fundamentservis.ru/voidacitys-script-builder-place-1-can-someone/
https://fundamentservis.ru/1-night-at-flumptys-2-one-night-at-flumpty-s-2/
https://fundamentservis.ru/usb-vid-148f-pid-5370-rev-0101-802-11n-usb-2/

du recorder for pc windows 7 free download

cyberlink powerdirector for windows 10 free download

mkvmerge gui download windows xp free

adobe premiere pro cc free download windows 8 free

internet browsers for windows xp free download free

driverpack solution for windows 10 64 bit free download offline

tor browser download free windows 10 free

download internet explorer for windows 7 professional 32 bit free

windows 7 themes for xp download free free

download windows media center 8 free

AnnasysBum

AnnasysBum said:

android apps download for pc freefree download game pc empire earth 1candy crush saga download for pc windows 7gcc compiler for windows 10 free downloaddownload game rise of nations pcdownload free windows 10 apps freeusb xhci compliant host controller windows 10 download freedownload windows 7 live wallpapers freepubg download pc free windows 7download file update windows 10
download and install eclipse for windows 10

download windows 10 home premium 64 bit iso

china mobile pc suite free download windows xp free

call of duty free pc download modern warfare 2

crysis pc game torrent download

bull sf free download pc

axis and allies pc board game free download

download nvidia geforce gt 330m driver windows 10 64 bit

download freda for windows 10

canon mf4320d driver download for windows 7 64 bit free

free download software microsoft office windows 10
broadcom 802.11 ac network adapter driver windows 10 download
3d themes for windows 7 free download free
xjis.nls windows xp sp3 download free
download net framework 2.0 for windows 10

https://chromebrowser.ru/facebook-download-for-desktop-windows-10-facebook/
https://hanralecon1988.wordpress.com/2021/05/21/hasp-hl-3-25-driver-download-windows-10-posts-in/
https://chromebrowser.ru/fallout-new-vegas-free-download-windows-10-fallout/
https://fundamentservis.ru/programs-like-cain-and-abel-top-15-cain-abel/
https://bestsmiles.net.ru/advance-turbo-flasher-free-download-for-windows-10/

blue light filter for pc free download
download modern combat 4 for pc windows 10
hikvision ivms 4200 download windows 10 64 bit
download bitlocker windows 10 64 bit
download minecraft free full version pc offline

kik windows 10 download free
download windows 10 home trial version for pc
download netbeans 8.2 for windows 10
free download bluetooth driver for windows 10 64 bit
download forza motorsport 2 for pc free

esonic motherboard drivers windows 7 free download free
far cry 4 free download full version pc windows 10
eseenet download for windows 10
free games for pc offline free download
adobe photoshop download free full version for pc

https://bestsmiles.net.ru/download-pci-serial-port-driver-for-windows-10/
https://rd-ok.ru/driver-booster-download-windows-10-driver-booster/
https://rd-ok.ru/64-bit-jre-download-windows-10-java-runtime/
https://bestsmiles.net.ru/download-rundll32-exe-for-windows-10-how-to/
https://fundamentservis.ru/nvidia-quadro-k3000m-driver-nvidia-quadro-k3000m/

card games for pc windows 7 free download

freeware chess game download for pc

windows 8.1 download free full version 64 bit for pc

adblock mozilla free download windows 10

deus ex pc game free download

free download windows 10 iso image file 64 bit

download andy emulator for pc windows 10

free download realtek hd audio manager for windows 10

download free malwarebytes for windows 10 64 bit

gameranger free download windows 10

AnnasysBum

AnnasysBum said:

download facebook spy tool

gcmob for windows pc free downloadwpa windows xp download freefruit blast game free download for pccisco vpn client windows 10 32 bit downloadbrink pc game free downloadwinrar ita download windows 7 freetelegram for pc windows 10 64 bit free downloaddownload the latest google chrome for windows 10vlc media player download for windows xp latest version freedirect3dx9 download windows 10
windows fx free download free

pc apps free download for windows 10

directx 8.0 download windows xp free

citrix xenapp free download for windows 10

best pc games without download

google scholar free download for windows 10

bass dll windows 10 download

sandboxie windows xp 32 bit download free

windows 7 3d desktop download free free

download whatsapp for pc windows 10 32 bit

download windows 10 installation media usb
battlefield 2 free download for pc highly compressed
download avakin life for pc windows 10
download eclipse windows 10
windows server 2003 standard edition product key free download free

https://chromebrowser.ru/forza-horizon-3-pc-free-download-windows-10-forza/
https://fundamentservis.ru/a-cell-phone-weighs-about-how-many-grams-how-much/
https://bestsmiles.net.ru/download-teamviewer-10-windows-teamviewer-for/
https://chromebrowser.ru/easy-driver-free-download-for-windows-10-download/
https://fundamentservis.ru/forge-of-empires-dynamic-tower-truce-tower/

download idm full crack for windows 10
lenovo z570 wifi drivers for windows 10 64 bit download
ace combat assault horizon pc game download
free pascal download windows 10 64 bit
free download windows 10 64 bit with activation key

windows longhorn iso free download free
pc apps free download for windows 10
dvd player software for windows 10 free download free
google duo for pc free download windows 8
ati radeon hd 4600 driver download windows 10 64 bit

crocodile clips download windows 10
dell wyse 5070 windows 10 iot download
free download ubuntu software windows 7 free
digital art software free download for pc
cooking games offline free download for pc

https://rd-ok.ru/download-webdav-for-windows-10-search-results/
https://chromebrowser.ru/facetime-for-pc-free-download-for-windows-10/
https://rd-ok.ru/download-yahoo-search-engine-for-windows-10/
https://bestsmiles.net.ru/download-powershell-windows-10-download-and/
https://fundamentservis.ru/can-a-tooth-infection-cause-hair-loss-can-a-tooth/

free download vmware workstation for windows 10 64 bit

celtx free download for windows 10 64 bit

castle crashers download pc free

download game nfs undercover pc

download minecraft pc windows 10 free

bluestacks 2 download for windows 10 64 bit

best pc games 2013 free download

avengers wallpaper for pc free download

download windows longhorn free free

best pc games under 100mb free download

Leave a comment