Every year, 100,000 babies don't make it to their first birthday because of CHD.
Bonnie-Rose Michelle Stribling | Heart Warrior of the Week

Name: Bonnie-Rose Michelle Stribling

Defect: Ventricular Septal Defect (VSD)

Birthday: February 8th, 2019

Described in a few words: Strong, funny, clever, brave

Diagnosis: Bonnie’s VSD was diagnosed at 10-weeks-old when she was struggling to feed and we took her to the doctor. They found a heart murmur so they performed an echocardiogram and that’s when they found a large VSD. Due to her inability to feed properly, they placed a G-tube so that she could gain weight, it was just recently removed after 10 months!

Surgeries: So far she has been surgery-free!

Time spent in hospital: Multiple admissions, the longest lasting a week.

Medications: Spironolactone and furosemide

More of Bonnie’s story, as told by her Mom, Kelly: We’re so proud of Bonnie and all that she has overcome at such a young and fragile age. Because she’s spent so much time in the hospital, she’s  a bit delayed in some areas; she just turned one but she hasn’t started crawling or walking, and she can’t pull herself up to stand. But we know that she will overcome these obstacles too!

There is so much worry being a CHD Family. Every time she gets sick, it’s not like any other child getting sick, for her it could mean the difference between life and death.  It’s also emotionally exhausting constantly waiting to see if she will need her VSD surgically repaired in the future.  Our doctors just told us they are going to keep an eye out for signs of congestive failure. And on top of all of that, she was also recently diagnosed with multifocal epilepsy, which she has to take medication for.

Despite these worries, we hold onto hope because we know our Bonnie is so strong and so brave; it amazes us how she is always smiling and nothing seems to bother her, even with all that CHD has thrown at her.

Ventricular Septal Defect (VSD)

Anatomy: This defect occurs when the heart’s inner wall (septum) that separates the left ventricle from the right ventricle has a hole or multiple holes in it. 

Complications: This hole allows oxygen-rich blood from the left ventricle to mix with oxygen-poor blood from the right ventricle, resulting in a lack of oxygen circulating throughout the body.

Symptoms: Bluish tint (cyanosis) to the skin, lips, and fingernails, along with poor feeding, poor weight gain, and fast breathing.

Treatment: Most VSD’s close on their own with time, but larger ones will require catheterizations or open-heart surgery in which a patch is placed over the hole.

Prevalence: This is the most common CHD, accounting for 25-30% of all congenital heart disease. It occurs in 2-5 out of every 1000 live births worldwide.

Comments

Christine Harrison

Christine Harrison said:

Bonnie Rose is a gorgeous little baby girl she melts my heart. Even though she struggles at times she always has a beautiful smile on her gorgeous little face.

Christine Harrison

Christine Harrison said:

Bonnie Rose is a gorgeous little baby girl she melts my heart. Even though she struggles at times she always has a beautiful smile on her gorgeous little face.

Jackie Pirie

Jackie Pirie said:

Bonnie Rose is a little sweetheart who I have the privilege of supporting and sharing her journey on our FB support Group Support A Life

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