Lucy Scott DeLuca | Heart Warrior of the Week
Lucy Scott DeLuca was diagnosed with heterotaxy, HLHS, TAPVR, DORV, bilateral vena cava and pulmonary atresia at her 22-week ultrasound. The ultrasound tech first noticed some misplaced organs then called in a doctor who recommended a fetal echo. It was at that appointment with a specialist from Children’s Hospital Philadelphia the very next morning when she was diagnosed with HLHS, DORV, bilateral vena cava and pulmonary atresia.
Little Lucy made a fierce entrance into the world on March 17th, 2017. It wasn’t until then that her TAPVR was fully discovered. In her first days of life, she underwent one cardiac catheterization and the Norwood procedure where she received a BT shunt in preparation for the Glenn procedure that usually takes place when the Heart Warrior is 6-9 months old. She spent three weeks in the hospital recovering and is currently on five medications to keep her tiny heart functioning. The hope is to wean her off some of these medications after her Glenn procedure.
Lucy’s parents describe her as tenacious, spirited, lovable and happy. When asked about their journey with CHD, her mom said the following:
 A rare birth defect that involves the heart and other organs being misplaced within the abdomen.
 Hypoplastic left heart syndrome. A heart where the left side of the heart doesn’t develop properly during pregnancy affecting blood flow throughout the heart and body.
 Total anomalous pulmonary venous return. A heart defect where all four pulmonary veins do not connect normally to the left atrium. Instead, they drain abnormally into the right atrium by way of an abnormal connection.
 Double outlet right ventricle. It is a rare form of congenital heart disease where both of the great vessels connect to the right ventricle. In a normal heart one of the great vessels connects to the left ventricle and the other to the right ventricle.
 A heart defect that leads to an abnormal vascular connection leading to diversion of blood flow.
 Instead of opening and closing to allow blood to travel from the heart to the lungs, a solid sheet of tissue forms, so blood can't travel by its normal route to pick up oxygen from the lungs.
 The first in a series of three open-heart surgeries to treat HLHS. It converts the right ventricle into the main ventricle pumping blood to both the lungs and the body.
 The second in a series of three open-heart surgeries to treat HLHS. It diverts half of the blood to the lungs when circulation through the lungs no longer needs as much pressure from the ventricle.