Heart Warrior of the Week – Tagged "CHD Awareness"

Kaeson Switch Edward Read | Heart Warrior of the Week

Save the Heartbeat Fam, meet Kaeson Switch Edward Read, your Heart Warrior of the Week! Kaeson is doing well now after one heart procedure and one open-heart surgery, but like so many who battle CHD, his journey to this point has been marked with many ups and downs. His Mom...

November 30, 2018 by Lani O'Gorman

Tags: CHD CHD Awareness congenital heart disease heart warrior of the week TGA transposition of the great arteries

Sonny James Hoffman | Heart Warrior of the Week

Your Heart Warrior of the Week is Sonny James Hoffman! Sonny was born on June 14^th, 2018 and for the first few hours of his life, he appeared to be a happy and healthy baby boy. That was until he went into cardiac shock while receiving a bath in the...

November 02, 2018 by Lani O'Gorman

Tags: CHD CHD Awareness congenital heart disease heart warrior of the week HLHS hypoplastic left heart syndrome

Krista Laine | Heart Warrior of the Week

Krista Laine is your Heart Warrior of the Week! She was orn on April 15th, 1994 and describes herself as positive, cheerful, ambitious and a bit of a perfectionist. Krista has had a unique journey with CHD because of the fact that she wasn’t diagnosed with atrial septal defect (ASD)...

October 04, 2018 by Lani O'Gorman

Tags: ASD CHD CHD Awareness congenital heart disease heart warrior of the week

Evangeline Shalom Smith | Heart Warrior of the Week

Evangeline Shalom Smith, who is described as courageous, brave and bold by her parents, is our Heart Warrior of the Week! Evangeline’s parents were missionaries in the Ukraine for the duration of the pregnancy. Due to the pregnancy taking place in a 3rd world country, they didn’t receive up-to-date medical...

August 22, 2018 by Lani O'Gorman

Tags: CHD CHD Awareness congenital heart disease heart warrior of the week TGA transposition of the great arteries

Steven Lee Burns | Heart Warrior of the Week

Steven Lee Burns is our heart Warrior of the week! He was born on March 16^th, 1990 with hypoplastic right ventricle and pulmonary atresia with an intact ventricular septum. Steven said his parents had no clue about his heart defects going into his birth. In fact, early on in his...

August 01, 2018 by Lani O'Gorman

Tags: CHD CHD Awareness congenital heart disease heart warrior of the week hypoplastic right ventricle PA pulmonary atresia tricuspid atresia

Daxtyn Kai Gabbart | Heart Warrior of the Week

Very special Heart Angel, Daxtyn Kai Gabbart, is our Heart Warrior of the Week! Daxtyn was born on December 21^st, 2017 with complete atrioventricular canal defect and coarctation of the aorta (CoA). His first surgery was performed on January 11^th, 2018 to correct the CoA and to have a band...

July 12, 2018 by Lani O'Gorman

Tags: CAVC CHD CHD Awareness CoA coarctation of the aorta complete atrioventricular canal defect congenital heart disease heart warrior of the week

Alexandra Rolland | Heart Warrior of the Week

Our Heart Warrior of the Week is Alexandra Rolland, an adult CHDer with a very unique story – she wasn’t diagnosed with her defect until she was 19 years old. We talked with Alexandra, this is what she had to say about CHD, healthcare, and advocating for adults living with congenital...

June 21, 2018 by Lani O'Gorman

Tags: bicuspid aortic valve CHD CHD Awareness congenital heart disease heart warrior of the week

Nolan James Hill | Heart Warrior of the Week

We talked with Hannah Hill, mom to Nolan, who is a very brave CHD warrior who was diagnosed with not one, but four congenital heart defects. She describes how they found out about his CHD’s, the journey they’ve walked so far and how their small but mighty addition to the...

May 23, 2018 by Lani O'Gorman

Tags: CHD CHD Awareness congenital heart disease double inlet left ventricle heart warrior of the week pulmonary atresia TGA transposition of the great arteries ventricular septal defect VSD

Johanna Sarnstrom

Johanna was born cyanotic (blue fingers, toes, and lips). Unable to determine a diagnosis right away, Doctors told her parents she only had a few days to live, if they were lucky. A diagnosis came 16 hours later after being taken to Children’s Hospital by an ambulance – Ebstein’s Anomaly.

May 04, 2018 by Lani O'Gorman

Tags: CHD CHD Awareness congenital heart disease ebstein's anomaly heart warrior of the week

Owen Dick | Heart Warrior of the Week

Our Heart Warrior of the Week is Owen Dick! Owen’s Mom, Sarah, received the news that her son might have a heart condition at 17 weeks gestation. Those fears were confirmed at 22 weeks when he was diagnosed with double outlet right ventricle and coarctation of the aorta.

April 17, 2018 by Lani O'Gorman

Tags: CHD CHD Awareness coarctation of the aorta congenital heart disease DORV Double outlet right ventricle heart warrior of the week ventricular septal defect VSD