Heart Warrior of the Week

Currently, Justus is like any normal child, but we do monitor his activity closely. He is very active and quite a daredevil, but he does get sick easily so we keep him in the home a lot to minimize contact with germs. Justus does not currently have any procedures scheduled...

Charlotte was one of the lucky Heart Babies that was diagnosed in-utero, and pretty early on in the pregnancy too. Shortly after her birth we were brutally welcomed into the CHD life with surgeries, long hospital stays, and all the uncertainties and fears that come with that. So far, our...

Our Heart Warrior of the Week is a strong and inspirational adult CHDer by the name of Bianca Lucci.  She shared with us the many obstacles she has faced and overcome and we are honored to now be sharing it with you. This is her story, in her own words.

We talked with Andrew Kay, a 52-year-old adult CHD survivor who lives with ventricular septal defect and damage from endocarditis that began when he was 50. His story includes multiple catheterization procedures and an open-heart surgery just this past June. 

Cash, a four-year-old who is full of life and spark, is our Heart Warrior of the Week! A mere hours before he was supposed to leave the hospital as a newborn, Cash's was diagnosed with two medium-sized ventricular septal defects (VSD). He underwent open-heart surgery at five-months-old, recovering in just…

Our Heart Warrior of the Week is Morgan Andrew Contreras who is living with coarctation of the aorta (CoA), bicuspid aortic valve (BAV) ventricular septal defect (VSD), patent ductus arteriosus (PDA). He was born on March 17^th, 2018 and his mom, Tracy, describes him as Happy, energetic, loving, and beautiful.

Today, we share not one, but two Heart Warriors of the Week! Meet Rachel Owens and Eli Hunter Brooks Owens, a mother and son duo who are both living with CHD.  Rachel, born on September 11^th, 1987, has primum atrial septal defect and mitral valve cleft. Throughout her journey with

Meet Marissa Domanico, our Heart Warrior of the Week! We talked with Marissa about all she has undergone throughout her almost 37-year journey with congenital heart disease – her hopes, fears, and the people that help get her through it each and every day.