Every year, 100,000 babies don't make it to their first birthday because of CHD.
CHD, CHD awareness

Steven Lee Burns | Heart Warrior of the Week

Steven Lee Burns is our heart Warrior of the week! He was born on March 16th, 1990 with hypoplastic right ventricle and pulmonary atresia with an intact ventricular septum.  Steven said his parents had no clue about his heart defects going into his birth. In fact, early on in his...
Nolan James Hill | Heart Warrior of the Week

Nolan James Hill | Heart Warrior of the Week

We talked with Hannah Hill, mom to Nolan, who is a very brave CHD warrior who was diagnosed with not one, but four congenital heart defects. She describes how they found out about his CHD’s, the journey they’ve walked so far and how their small but mighty addition to the...
Callie Shay Harper Gullahorn | Heart Warrior of the Week

Callie Shay Harper Gullahorn | Heart Warrior of the Week

Callie’s parents went into their anatomy scan like most expectant parents do – excited to find out the sex of their baby.  Instead of a celebratory type of visit, they got a piece of news that they couldn’t have imagined in their wildest dreams – their little girl had congenital heart disease...
CHD, congenital heart disease

Sloan Elise Rieke | Heart Warrior of the Week

Meet Sloan Elise Rieke, your Heart Warrior of the Week! Sloan came into the world on February 28th, 2017; doctors quickly picked up a heart murmur and decided to monitor it closely even though it wasn’t much of a concern initially (it is not uncommon for newborn babies to have...
chd, congenital heart disease, tetralogy of fallot

Trent Timothy Harding | Heart Warrior of the Week

Trent Timothy Harding is our Heart Warrior of the Week! Trent was born on November 30th, 2010, but wasn’t diagnosed with Tetralogy of Fallot until he was 5 weeks old. He has undergone two open-heart surgeries throughout his journey with CHD. The first was an emergency surgery in which a...
Lucy Scott DeLuca | Heart Warrior of the Week

Lucy Scott DeLuca | Heart Warrior of the Week

Lucy Scott DeLuca was diagnosed with heterotaxy, HLHS, TAPVR, DORV, bilateral vena cava and pulmonary atresia at her 22-week ultrasound. The ultrasound tech first noticed some misplaced organs then called in a doctor who recommended a fetal echo. It was at that appointment with a specialist from Children’s Hospital Philadelphia...
Avelyn Marie Stahlman-Pickel | Heart Warrior of the Week

Avelyn Marie Stahlman-Pickel | Heart Warrior of the Week

Avelyn Marie Stahlman-Pickel is our Heart Warrior of the Week! Little Avelyn is the embodiment of a survivor. In fact, we’re pretty sure that if you were to look up the definition of “survivor” on Google, a photo of her would show the second you hit search. This remarkable little...