Every year, 100,000 babies don't make it to their first birthday because of CHD.
Nolan James Hill | Heart Warrior of the Week

Nolan James Hill | Heart Warrior of the Week

We talked with Hannah Hill, mom to Nolan, who is a very brave CHD warrior who was diagnosed with not one, but four congenital heart defects. She describes how they found out about his CHD’s, the journey they’ve walked so far and how their small but mighty addition to the...
CHD, CHD awareness, congenital heart disease

Owen Dick | Heart Warrior of the Week

Our Heart Warrior of the Week is Owen Dick! Owen’s Mom, Sarah, received the news that her son might have a heart condition at 17 weeks gestation. Those fears were confirmed at 22 weeks when he was diagnosed with double outlet right ventricle and coarctation of the aorta.

Connor Joseph Tolle | Heart Warrior of the Week

Connor Joseph Tolle | Heart Warrior of the Week

Cassy found out her baby boy would be born with two congenital heart defects at 26 weeks pregnant – truncus arteriosus type 2 and ventricular septal defect (VSD).  Connor Joseph Tolle was born on June 12th, 2017 and is now a happy 9-month old, but he had to overcome some major...
Callie Shay Harper Gullahorn | Heart Warrior of the Week

Callie Shay Harper Gullahorn | Heart Warrior of the Week

Callie’s parents went into their anatomy scan like most expectant parents do – excited to find out the sex of their baby.  Instead of a celebratory type of visit, they got a piece of news that they couldn’t have imagined in their wildest dreams – their little girl had congenital heart disease...
CHD, congenital heart disease

Sloan Elise Rieke | Heart Warrior of the Week

Meet Sloan Elise Rieke, your Heart Warrior of the Week! Sloan came into the world on February 28th, 2017; doctors quickly picked up a heart murmur and decided to monitor it closely even though it wasn’t much of a concern initially (it is not uncommon for newborn babies to have...
chd, congenital heart disease, tetralogy of fallot

Trent Timothy Harding | Heart Warrior of the Week

Trent Timothy Harding is our Heart Warrior of the Week! Trent was born on November 30th, 2010, but wasn’t diagnosed with Tetralogy of Fallot until he was 5 weeks old. He has undergone two open-heart surgeries throughout his journey with CHD. The first was an emergency surgery in which a...
Conley James Hickman | Heart Warrior of the Week

Conley James Hickman | Heart Warrior of the Week

Our Heart Warrior of the Week is Conley James Hickman or “Conley the Brave,” who is living with Tetralogy of Fallot.  He and his fraternal twin brother were born at 34 weeks gestation on February 26th, 2017.  This is his story, as told by his Mom, Kate. Conley was diagnosed...

chd, chd awareness, chd support, chd support group, congenital heart disease

Hunter J. McArter | Heart Warrior of the Week

Hunter J. McArter is our #HeartWarrior of the Week! Hunter’s parents received the news that there was something very wrong with their son’s heart at their 20-week ultrasound. Turns out there are many things wrong with his heart, he was diagnosed with tricuspid atresia type 2, transposition of the great...
Jessica Elena Manning | Heart Warrior of the Week

Jessica Elena Manning | Heart Warrior of the Week

At just 23 years old, Jessica Manning has undergone more surgeries and procedures than most people do in their entire lifetime.  Her battle with CHD began back in 1993 when she was just three days old.  Her mom noticed that her lips would turn blue and she would struggle to...
Avelyn Marie Stahlman-Pickel | Heart Warrior of the Week

Avelyn Marie Stahlman-Pickel | Heart Warrior of the Week

Avelyn Marie Stahlman-Pickel is our Heart Warrior of the Week! Little Avelyn is the embodiment of a survivor. In fact, we’re pretty sure that if you were to look up the definition of “survivor” on Google, a photo of her would show the second you hit search. This remarkable little...