Every year, 100,000 babies don't make it to their first birthday because of CHD.
Olivia Juliette | Heart Warrior of the Week

Olivia Juliette | Heart Warrior of the Week

Correction of mal-rotation at a week old and gtube placement on July 12, 2017. Thankfully she has not needed any heart surgeries yet, but she has had 2 surgeries.  Olivia was born with mal-rotation (her intestines didn't develop properly) and at one-week-old, she had surgery to correct it.  While in...
Theo Marley | Heart Warrior of the Week

Theo Marley | Heart Warrior of the Week

His fighting spirit and that nothing ever gets in his way. To look at him you would never know the struggles he deals with every single day. You would never know how fragile his heart actually is. Theo is just incredible, his smile is infectious and we call him the...

June 05, 2020 by Lani O'Gorman
Jacob Alexander Burris | Heart Warrior of the Week

Jacob Alexander Burris | Heart Warrior of the Week

Jacob was a recipient of a WISH from Make-A-Wish. And after that he became a WISH Ambassador and wants all CHD heart heroes to know that they likely qualify for a WISH! In 2015, Make-A-Wish, Oregon sent Jacob to Dallas, Texas to meet the legendary comic book creator, Stan Lee!
Hudson Kyo Suh | Heart Warrior of the Week

Hudson Kyo Suh | Heart Warrior of the Week

Hudson is our Heart Warrior of the Week! Learn more about his journey with CHD, as told by his mom, Tiffany.  I don’t think there will come a day where there won’t be any worries. He’s already immune-suppressed because of his anti-rejection medications, meaning he’s more susceptible to catching a...

Billy-Blue Wilson | Heart Warrior of the Week

Billy-Blue Wilson | Heart Warrior of the Week

Our Heart Warrior of the Week is beautiful Heart Angel, Billy-Blue Wilson. Billy was born April 5th of last year and was a fighter from the start. After experiencing some breathing difficulties, Billy was eventually diagnosed with multiple congenital heart defects and would soon undergo open-heart surgeries and catheterizations to...

Bonnie-Rose Michelle Stribling | Heart Warrior of the Week

Bonnie-Rose Michelle Stribling | Heart Warrior of the Week

We’re so proud of Bonnie and all that she has overcome at such a young and fragile age. Because she’s spent so much time in the hospital, she’s  a bit delayed in some areas; she’s just turned one but she hasn’t started crawling or walking and she can’t pull herself...
Justus Metts | Heart Warrior of the Week

Justus Metts | Heart Warrior of the Week

Currently, Justus is like any normal child, but we do monitor his activity closely. He is very active and quite a daredevil, but he does get sick easily so we keep him in the home a lot to minimize contact with germs. Justus does not currently have any procedures scheduled...

Charlotte Christine Marra | Heart Warrior of the Week

Charlotte Christine Marra | Heart Warrior of the Week

Charlotte was one of the lucky Heart Babies that was diagnosed in-utero, and pretty early on in the pregnancy too. Shortly after her birth we were brutally welcomed into the CHD life with surgeries, long hospital stays, and all the uncertainties and fears that come with that. So far, our...

January 03, 2020 by Lani O'Gorman
Heart Warrior of the Week | Bianca Lina Lucci

Heart Warrior of the Week | Bianca Lina Lucci

Our Heart Warrior of the Week is a strong and inspirational adult CHDer by the name of Bianca Lucci.  She shared with us the many obstacles she has faced and overcome and we are honored to now be sharing it with you. This is her story, in her own words.

Heart Warrior of the Week | Andrew Kay

Heart Warrior of the Week | Andrew Kay

We talked with Andrew Kay, a 52-year-old adult CHD survivor who lives with ventricular septal defect and damage from endocarditis that began when he was 50. His story includes multiple catheterization procedures and an open-heart surgery just this past June.