Every year, 100,000 babies don't make it to their first birthday because of CHD.
Heart Warrior of the Week
Steven Lee Burns | Heart Warrior of the Week
Steven Lee Burns is our heart Warrior of the week! He was born on March 16th, 1990 with hypoplastic right ventricle and pulmonary atresia with an intact ventricular septum. Steven said his parents had no clue about his heart defects going into his birth. In fact, early on in his...
Daxtyn Kai Gabbart | Heart Warrior of the Week
Very special Heart Angel, Daxtyn Kai Gabbart, is our Heart Warrior of the Week! Daxtyn was born on December 21st, 2017 with complete atrioventricular canal defect and coarctation of the aorta (CoA). His first surgery was performed on January 11th, 2018 to correct the CoA and to have a band...
Alexandra Rolland | Heart Warrior of the Week
Our Heart Warrior of the Week is Alexandra Rolland, an adult CHDer with a very unique story – she wasn’t diagnosed with her defect until she was 19 years old. We talked with Alexandra, this is what she had to say about CHD, healthcare, and advocating for adults living with congenital...
Nolan James Hill | Heart Warrior of the Week
We talked with Hannah Hill, mom to Nolan, who is a very brave CHD warrior who was diagnosed with not one, but four congenital heart defects. She describes how they found out about his CHD’s, the journey they’ve walked so far and how their small but mighty addition to the...
Johanna Sarnstrom
Johanna was born cyanotic (blue fingers, toes, and lips). Unable to determine a diagnosis right away, Doctors told her parents she only had a few days to live, if they were lucky. A diagnosis came 16 hours later after being taken to Children’s Hospital by an ambulance – Ebstein’s Anomaly.
Owen Dick | Heart Warrior of the Week
Our Heart Warrior of the Week is Owen Dick! Owen’s Mom, Sarah, received the news that her son might have a heart condition at 17 weeks gestation. Those fears were confirmed at 22 weeks when he was diagnosed with double outlet right ventricle and coarctation of the aorta.
Aero Patrickanthony Cordova | Heart Warrior of the Week
Our Heart Warrior of the Week is a very special Heart Angel by the name of Aero Patrickanthony Cordova. Aero’s Mom received the news of his diagnosis at a 20-week appointment. She received another blow of news shortly after he was born – his condition was much more severe than doctors...
Connor Joseph Tolle | Heart Warrior of the Week
Cassy found out her baby boy would be born with two congenital heart defects at 26 weeks pregnant – truncus arteriosus type 2 and ventricular septal defect (VSD). Connor Joseph Tolle was born on June 12th, 2017 and is now a happy 9-month old, but he had to overcome some major...
Callie Shay Harper Gullahorn | Heart Warrior of the Week
Callie’s parents went into their anatomy scan like most expectant parents do – excited to find out the sex of their baby. Instead of a celebratory type of visit, they got a piece of news that they couldn’t have imagined in their wildest dreams – their little girl had congenital heart disease...
Rycker William Daniel Rohm-Deceder | Heart Warrior of the Week
Rycker William Daniel Rohm-Deceder is our Heart Warrior of the Week! Rycker’s Mom and Dad received some of the most devastating news a parent can get at their 24-week ultrasound – their baby had two holes in his heart that would need open-heart surgery to be repaired. His diagnosis would end...
